HSP Research Foundation
Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find a cure. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing support and education.
Genes never before linked with human disease found
Implications for choice of genetic tests and screens
Current theories fall short
May lead to a number of cures
Human model for drug screening
May be critical for nerve cell function
ALS2 mutations cause ALS, PLS or HSP
Impaired dopamine transmission in common
Promising progress… and a long way to go
Day of global support for rare diseases
Full Government commitment is essential
Submit a Community Member profile
US Synapse & UK Newslink
This space is for you to have your say. Email us
Request for information and advice
Winter 2014 edition in early June
related to HSP?
HSPer trys Fampradine (Fampyra)
Ideas for treating the pain?
Fundraising for HSP Research
The current phase of research begun in 2013 in the Towards a Cure for HSP research program is titled Testing & Selecting Therapeutic Drug Candidates for treating HSP.
Two promising candidate drugs are being investigated to determine their suitability for undertaking clinical trials. The current drug investigations are being carried out with nasal HSP stem cells. Two new investigations are in the advanced planning stage, one with HSP mice and the other with human HSP neurons derived from a different type of stem cell.
Success with a drug candidate in these separate investigations will make a very strong case for taking the drug candidate into human clinical trials to test its potential to cure HSP.
Our fundraising performance in calendar 2013 was only modest. We encourage everyone in the HSP community to be determined to find a way to fund the current and planned research in 2014, as nobody wants the research work to slow down in the quest to find suitable candidates for taking to clinical trials and the possibility of a cure for HSP. Please give generously to ensure continuity of research towards a cure for HSP.