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HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing spasticity and severely impairing walking.

The HSP Research Foundation is an incorporated, registered Australian charity which funds research to find a cure. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing support and education.

8% of ADHSP related to REEP1 gene

13 new REEP1 mutations discovered Read more »

Stem cells without using embryos

Turning skin cells into stem cells Read more »

No evidence HSP and MS are related

HSP genes don't influence MS susceptibility Read more »

Understanding more about how Spastin works

New insights into structural defects Read more »

SPG10–related HSP studied

3% of ADHSP is the SPG10 type Read more »

New spastin mutation discovered

Implicated in late-onset pure HSP Read more »

New gene implicated in causing AD-HSP

Study on Chinese family Read more »

Spastin responsible for microtubule bundling

Spastin causes microtubule-severing and bundling Read more »

Metabolic cause of some spastic paraplegia

Another compelling reason for gene testing Read more »

Genetic Testing – some new considerations

Differences between HSPs and other diseases not clear-cut Read more »

Botox not just for wrinkles

Spasticity reduced in German HSPers Read more »

Scooter does the trick!

A woman HSPer from Norway Read more »

Fund Raising for Stem Cell Research

Potential path to a cure Read more »

Gene Testing Service now a reality!

Thanks to your $84,000, ….. Read more »

Report on Berlin Research Symposium, April 2008

There were about 60 participants, mostly researchers ..... Read more »

Tim

Steve

This page is dedicated to what you, the HSP community, are saying

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Diagnosing HSP by elimination

doesn’t seem very definite ..... Read more »

A family question + 2 replies

Should we know if we have HSP Read more »