HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing spasticity and severely impairing walking.

The HSP Research Foundation is an incorporated, registered Australian charity which funds research to find a cure. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing support and education.

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Questions raised about Botox

muscle loss and weakness with long term use

Large HSP survey in Japan

321 HSPers from 144 families registered

New HSP gene testing method

Sporadic HSP cases analysed

Link between reflexes and spasticity questioned

Over-active reflexes and calf muscle spasticity

KIF5 study relevant to SPG10 HSP

Neuronal transport mechanism identified

Gait study in children with HSP2

Volunteers needed!

HSP and bodily functions

Managing urinary incontinence

Disability Pension

Some HSPers may be eligible

Seated Exercises

more options for staying fit

Reading & News on Living with HSP

Book, magazine, website reviews and more…

Mobility Technology

New Walker and new AFOs

Stem cell research progress report

Exciting new developments

HSP gait studies underway1

One on kids, one on adults

Rooty Hill HSP social

Enjoyable lunch & get-together

Foundation AGM October

Committee elections

This space is for you to have your say. Email us

Summer edition published 5 December, 2011

Autumn Edition in early March 2012

Fundraising

The next step in the Towards a Cure for HSP Research Program is a 2 year research project Identifying Therapeutic Drug Candidates for treating HSP commenced in January 2011 and will require $200,000 input from the Foundation

The project aims to identify potential drugs to compensate for important cell functions impaired by the mutated genes that cause HSP.

You gave $84,965 in 2010. Thank You! The target for 2011 now becomes $115,000. As an all-volunteer Foundation, we can tell you that over 95% of all money raised goes to fund this research. Make a donation.

2011

2010

$115,000
$103,500
$92,000
$80,500
$69,000
$57,500
$46,000
$34,500
$23,000
$11,500
$0
$100,000
$90,000
$80,000
$70,000
$60,000
$50,000
$40,000
$30,000
$20,000
$10,000
$0