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HSP Research Foundation

Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing spasticity and severely impairing walking.

The HSP Research Foundation is an incorporated, registered Australian charity which funds research to find a cure.  The Foundation is also the community hub for HSPers in Australia, creating awareness and providing support and education.

Research HighlightsView archive »

Pivotal Trial in Muscular Dystrophy

Ataluren designated for PTC124 Read more »

Australians make stem cell breakthrough

Turning skin cells into stem cells Read more »

Largest Population Study ever

HSP rate 7.4 per 100,000 population Read more »

SPG36 – new HSP gene locus

Causes complicated AD-HSP Read more »

REEP1 AD-HSP study

Linking genes to clinical presentation Read more »

How paraplegin works (SPG7)

Paraplegin loss causes SPG7 HSP Read more »

Spastin levels found to be important

Study of spastin gives insight Read more »

Living with HSPManagement & Treatment NewsView archive »

Fitness - a Key for HSPers

Getting Fit & Staying Fit Read more »

WE MOVE Spasticity Survey

Invitation to Participate Read more »

Whirlwind Wheelchair

Breakthrough in design and function Read more »

Cursed by her genes

Krystal changes her destiny Read more »

HSPRF NewsView archive »

2009 Workshop & AGM in Melbourne

All Victorian HSPers welcome Read more »

Rare genetic conditions on the rise

More conditions being recognised Read more »

UK Newslink

Newsletter of the UK HSP group Read more »

Member ProfilesEmail Us »

Your FeedbackView archive »

This page is dedicated to what you, the HSP community, are saying

Email us to have your say

Stem Cell Pilot Study

Good volunteer experience Read more »