HSP Research Foundation
Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing spasticity and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity which funds research to find a cure. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing support and education.
Questions raised about Botox
muscle loss and weakness with long term use
Large HSP survey in Japan
321 HSPers from 144 families registered
New HSP gene testing method
Sporadic HSP cases analysed
Link between reflexes and spasticity questioned
Over-active reflexes and calf muscle spasticity
KIF5 study relevant to SPG10 HSP
Neuronal transport mechanism identified
Gait study in children with HSP2
Volunteers needed!
HSP and bodily functions
Managing urinary incontinence
HSP Workshop, Adelaide, November 2011
Four great sessions
Disability Pension
Some HSPers may be eligible
Seated Exercises
more options for staying fit
Reading & News on Living with HSP
Book, magazine, website reviews and more…
Mobility Technology
New Walker and new AFOs
Stem cell research progress report
Exciting new developments
HSP gait studies underway1
One on kids, one on adults
2011 fundraising target in sight
$12,000 to go
Rooty Hill HSP social
Enjoyable lunch & get-together
Foundation AGM October
Committee elections
This space is for you to have your say. Email us
Summer edition published 5 December, 2011
Autumn Edition in early March 2012
Fundraising
The next step in the Towards a Cure for HSP Research Program is a 2 year research project Identifying Therapeutic Drug Candidates for treating HSP commenced in January 2011 and will require $200,000 input from the Foundation
The project aims to identify potential drugs to compensate for important cell functions impaired by the mutated genes that cause HSP.
You gave $84,965 in 2010. Thank You! The target for 2011 now becomes $115,000. As an all-volunteer Foundation, we can tell you that over 95% of all money raised goes to fund this research. Make a donation.