HSP Research Foundation
Welcome to the HSP Research Foundation - created in 2005 to find a cure for Hereditary Spastic Paraplegia - an inherited, degenerative disease affecting mainly the legs, causing muscle weakness, spasticity and severely impairing walking.
The HSP Research Foundation is an incorporated, registered Australian charity that facilitates and funds research to find a cure. The Foundation is also the community hub for HSPers in Australia, creating awareness and providing support and education.
Abnormalities correlated with symptoms
Microtubule structure and function studied
Multiple valuable findings
Almost 3 times more prevalent
Impaired cell structure connected with symptoms
Further study may lead to therapies
Important in the structure that houses the brainstem
Part 5 of a series – self-guided e-therapies
Improved stability standing and walking
Priority needs identified
A personal account
Modern ultra low ‘tadpole’ style
Elastic body suit technology developed
Scooter, Cycle and in-home supports
Everyone has genetic flaws
Changes under the new government
September & November 2013 e-newsletter issues
Video presentations available
A long way to reach our goal
Invitation to participate
Clinical and genetic databases developed
Fundraising for HSP Research
The current phase of research begun in 2013 in the Towards a Cure for HSP research program is titled Testing & Selecting Therapeutic Drug Candidates for treating HSP.
With promising candidate drugs identified, the research work now needs to delve deeper into how HSP affects cell function and to look more closely at the mechanisms at play. Development and refinement of both neuron-like stem cells and the technologies to measure and quantify cell structures and functions will continue in the quest for reliable validation of results. Early-stage planning is underway to generate and study induced pluripotent stem (iPS) cells that have HSP, with the aim of providing another important level of validation.
As you can see from the gauge below, we are a long way short of our 2013 fundraising target of $75,000 coming into the Christmas fundraising campaign. Please give generously to ensure continuity of research towards a cure for HSP.