Posted - June 2011 in Community Members
I was born in Burnie Tasmania in 1982 and been here most my life. Between 6 and 9 years old, I lived in Iron Baron, South Australia with my Mum, stepfather and sister. I loved living there and had a lot of fun with my friends, enjoyed riding my BMX bike and swimming at the pool there.
When I was in grade 5 (10 years old) I started showing signs of HSP but wasn’t diagnosed until my mid-teens. The worst part for me in the start was the teasing at school. I was embarrassed to go places when I was a teenager … felt like people would stare. I have grown to be comfortable with having HSP and that I can do anything I put my mind to. I now use a pair of elbow crutches to walk.
There is no one else in my family with HSP and my children haven’t any signs or symptoms of HSP.
I have two beautiful children, Elly 7 years and Billy 4 years. They are healthy and happy and mean the world to me. I separated from the children’s father when Billy was a baby. It was one of the hardest things being a single mum. 6 months later, I managed to get my P’s drivers licence, which was something I was really proud of, as I never thought I would be able to drive. I have had my car modified with hand controls for the accelerator and brake, as I can’t feel the pedals with my feet.
I now have a wonderful partner Daniel who I met on Facebook. He is from Campbelltown, Sydney and has moved to Tasmania to be with me. He is a wonderful father figure to my children and a great support to myself.
I enjoy painting, drawing which I did a lot of in school, anything creative and hands-on I love doing – cooking gardening, car stuff, making jewellery.
In the last month I decided to create a page on Facebook, which I called Spastic Paraplegia Australia for people with HSP and their family and friends to communicate with others going through the same thing.
Link to Facebook page: