Gait study in children with HSP

Posted - December 2011 in Living with HSP - Management & Treatment News

Researcher Brooke Adair

Hello, I’m Brooke Adair. I am a physiotherapist and am involved in research at the University of Melbourne to better understand the walking patterns of children with HSP. Results from this study may assist clinicians with diagnosis and treatment.

The study is aimed at children who:

* are aged between 6–18

* have HSP

* and can walk 10m unaided.

We are particularly interested in children who have a family history of HSP.

The assessment involves completing some questionnaires and having the walking pattern recorded at the University of Melbourne. The session will take about 2 hours.

 

Markers attached for recording

During the session the children will have small reflective markers placed on their legs similar to those shown in the picture.

Children with HSP from anywhere are welcome to participate in this study in Melbourne, which will run from mid-December 2011 to around the end of March 2012, however there is no budget to meet travel or other expenses. Please download and read the accompanying documents:

for more information on the study and what participating in it involves.

If you know of families with children who have HSP, it would be appreciated if you would bring this communication to their attention.

If you are interested or have questions, contact me on (03) 8344 0486 (where you may need to leave a message) or by e-mail at b.adair@student.unimelb.edu.au

Thank You!

Comments on this story

  1. ANNE posted at 8:51 pm on 5 December 2011Reply

    Hello Brooke,
    I wish we could participate but we are in the U.S.
    My 14 year old adopted daughter has HSP (SP6) inherited from her father. I wish we could participate – do you have anybody here that you are collaborating with that could assist you with the research?
    Anne

  2. Terina posted at 9:08 pm on 5 December 2011Reply

    Hello Brooke,

    I have 3 children with hsp, and for many years we have had 3d gait’s performed at Royal Childrens Hospital in Brisbane, I would be happy to ask if I could have these video’s
    sent for your research.

    Please send me an email if you would like me top follow through with this.

    Kind Regards

    Terina

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